Infusion Therapy: Meet Michael

Categories: Patient Families
No one could tell Meagan Ribera what was wrong with her son. She had taken him to doctors across New England without getting an answer. All she knew was that he had multiple issues: He was blind in one eye and had 20/400 vision in the other; he was born with a hole in his …

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Spotlight on Research: Charcot-Marie-Tooth Disease

Categories: Orthopedics Now, Patient Families
Sylvia Ounpuu & Kristan Pierz Ortho Now Summer 2017
Researchers Shine Light on Charcot-Marie-Tooth Disease Research on a century-old disease continues at Connecticut Children’s Medical Center, where researchers are working to unlock the mysteries of Charcot-Marie-Tooth (CMT) disease, a relatively rare condition but one of the most commonly inherited neurological disorders observed in children and youth. First identified in 1886, CMT – also known …

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Walmart’s “WHY” – The phone call no parent dreams of receiving…

Categories: Cause Related Marketing Partnerships, Children's Miracle Network Hospitals, Patient Families
Mike started his day like any other weekday in July. He helped his son, Hayden, get ready for camp, dropped him off and then headed to work at Walmart in Waterbury, where he is employed as the Operations Assistant Store Manager. Hayden was really excited because it was field trip day and the campers were …

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Everything was fine, until it wasn’t. That’s when Connecticut Children’s stepped in to save our son.

Categories: Patient Families
Rylan
Submitted by Isabelle E., Rylan’s Mother. My second pregnancy was a smooth, healthy one with no red flags on any of my routine ultrasounds. Rylan was born in Waterbury on Monday, October 6, 2015 weighing 9lbs 1oz. There were no red flags at the time of Rylan’s birth. It was not until 24 hours later, …

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