“Chilling” Moments Lead to Life-Saving Answers

Categories: Cause Related Marketing Partnerships, Events

Making a 911 call for a child can be a parent’s worst nightmare.

Michael Ribera undergoing an infusion at Connecticut Children’s with his mom, Meagan, by his side.

For Meagan Ribera, dialing that number became a reality on October 26, 2012, when her son, Michael, experienced severe breathing problems.

“He didn’t look good, and he didn’t sound good,” said Meagan, who was at home with him that day. “He has trouble with his speech, so it’s hard for him to try to put into words what is wrong. I looked over at him and he said, ‘I can’t breathe. I need doctor.’ When he put those words and those sentences together, I knew he was in trouble.”

Leading up to that moment in time, no one could tell Meagan or her husband, Robert Ribera, what was wrong with their child. They had taken him to doctors across New England without getting an answer. What they did know was that Michael had multiple issues: He was blind in one eye and had 20/400 vision in the other; he was born with a hole in his heart; had orthopedic problems; multiple cardiac concerns; developmental delays; cognitive delays; and a speech disorder called childhood apraxia of speech. But worst of all, he suffered constant severe respiratory problems.

“He was pretty much chronically sick for the first eight years,” Meagan said.

When Michael started breathing noisily that day and began to turn gray, Meagan called her husband, who advised her to call 911 immediately. As she spoke with the 911 operator, Michael threw up, had a seizure, and lost consciousness. “I was sitting on the kitchen floor crying, holding him. I remember I had the phone on speaker, and I was screaming, ‘He’s dying!’ I thought he was dead in my arms,” she said.

Respiratory Issues Unmasked

Michael representing Connecticut Children's at a community event.Thanks to the skilled medical staff at Connecticut Children’s Medical Center, Michael survived that chilling incident, but there was still no answer as to why he was having respiratory issues. Then, at his next regular appointment, Michael was referred to Nicholas Bennett, MBBChir, PhD, who had just joined the staff.

“Once I saw him, I could see the problem,” Dr. Bennett said. “It was one of those situations where I walked into the room and said, ‘I know exactly what’s wrong with your son, and I can get him better.’”

Dr. Bennett had looked at Michael’s immunology tests and recognized hypogammaglobulinemia, a rare disorder that compromises the immune system and was responsible for his respiratory problems. More sophisticated genetic tests revealed that he also had oculofaciocardiodental syndrome (OFCD). Michael is one of only a handful of boys to survive with OFCD, and is the only boy known to have both OFCD and hypogammaglobulinemia.

To treat the respiratory problem, Dr. Bennett started Michael on immune globulin, which is delivered intravenously in four-hour infusion sessions once a month. The results were both rapid and dramatic. Within two or three weeks, his respiratory problems had vanished. He no longer suffers massive breathing crises, and he is able to go to school without losing months to his illness.

“It took me two years before I could see Dr. Bennett without crying,” Meagan said, “because he literally saved Michael. This simple little drip has been so life-altering; it literally saved my child’s life.”

Michael Ribera, who was named Connecticut Children’s 2018 Children’s Miracle Network Hospitals Champion, was all smiles at the celebratory kickoff April 4th. Michael is pictured here with his parents, Meagan and Robert, his sister, Emma, and the 2017 Miss Connecticut, Eliza Kanner.

World-Class Care Close to Home

Now 13, Michael, who was named a 2018 Children’s Miracle Network Hospitals Champion, is one of the children who will benefit from a new Infusion Center at Connecticut Children’s, where a fundraising campaign is now underway. A Dialysis Center is also planned at the Medical Center, where outpatient dialysis services will be geared toward pediatric patients awaiting transplant, the first facility of its kind in the state.

Both centers will provide children throughout the state and across the region with world-class care close to home.

Enter the “Chill Zone”

To help provide world-class care for children like Michael, Cumberland Farms is once again hosting its “Cups for Kids” campaign. Participating Cumberland Farms in Connecticut and Western Massachusetts locations will donate five cents from every Chill Zone (fountain and frozen) beverage purchased during the month of August to benefit patient care at Connecticut Children’s.

This will be the seventh year that Cumberland Farms has supported Connecticut Children’s through its “Cups for Kids” campaign, raising an amazing $129,623 in the process.

Be sure to get your “chill” on at participating Cumberland Farms now through August 31 and support life-saving care at Connecticut Children’s for patients like Michael!

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  101. Ways of Preventing Premature Hair Graying.Are you looking for ways to prevent the aging process when it comes to your hair? While hair dyes are great for covering gray strands, the chemicals contained in commercial dye products can often worsen the situation. To naturally treat graying hair, follow the tips provided below.Combating Gray Hair: Why Natural is Best.1.No more scented oils.Doing away with perfumed hair oils is a great way to contain the growth of gray hair, since the chemicals in these oils tend to aggravate the problem even further. A better substitution for scented hair oil would be pure coconut oil.2.Avoid external pollutants.The free radicals in environmental pollution can wreck havoc on your hair color. If you must go outside, cover your head with a piece of cloth or a head cap, since this will keep dirt and chemicals from entering the scalp and prevent graying.3.Do away with commercial shampoos.Over time, the excessive use of expensive commercial shampoos will eventually result in gray hair. To keep this from happening, consider using a natural herbal shampoo instead.4.Eat healthy.By consuming foods and liquids rich in vitamins and minerals, you are guaranteeing the health and vitality of your hair. Green vegetables, fruit, and other foods high in vitamin B are especially helpful in preventing premature graying. Fried and processed foods, alcohol, and coffee have been known to deplete nourishing nutrients in hair, so avoid them, if at all possible.5.Stop using hair dyes.Using hair colorants at the first sight of gray hair will only worsen the problem, since harsh chemicals have an adverse affect on healthy hair. If you must color your hair, stick to environmentally friendly products. There is no guarantee they won’t stop the graying process, but at least they won’t intensify it.6.Other methods.It’s been said that mixing the contents of a vitamin E tablet and coconut oil and massaging it in the scalp is a wonderful treatment for preventing gray hair. Also, mixing a tablespoon of yeast and yogurt and eating it before every meal can also be effective.

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    In December of 2017, Donald Trump made history by recognizing Jerusalem as the captial of Israel. Why is this big news? Because by this the Jewish people of Israel are now able to press forward in bringing about the Third Temple prophesied in the Bible.

    The Jewish people deny Jesus as their Messiah and have stated that their Messiah has been identified and is waiting to be revealed. They say this man will rule the world under a one world religion called “spiritualism”.

    They even printed a coin to raise money for the Temple with Donald Trumps face on the front and with king Cyrus'(who built the second Temple) behind him. On the back of the coin is an image of the third Temple.

    The Bible says this false Messiah who seats himself in the Third Temple will be thee antichrist that will bring about the Great Tribulation, though the Jewish people believe he will bring about world peace. It will be a false peace for a period of time. You can watch interviews of Jewish Rabbi’s in Israel speaking of these things. They have their plans set in place. It is only years away!

    More importantly, the power that runs the world wants to put a RFID microchip in our body making us total slaves to them. This chip matches perfectly with the Mark of the Beast in the Bible, more specifically Revelation 13:16-18:

    He causes all, both small and great, rich and poor, free and slave, to receive a mark on their right hand or on their foreheads, and that no one may buy or sell except one who has the mark or the name of the beast, or the number of his name.

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    Then a third angel followed them, saying with a loud voice, “If anyone worships the beast and his image, and receives his mark on his forehead or on his hand, he himself shall also drink of the wine of the wrath of God, which is poured out full strength into the cup of His indignation. He shall be tormented with fire and brimstone in the presence of the holy angels and in the presence of the Lamb. And the smoke of their torment ascends forever and ever; and they have no rest day or night, who worship the beast and his image, and whoever receives the mark of his name.” (Revelation 14:9-11).

    People have been saying the end is coming for many years, but we need two key things. One, the Third Temple, and two, the technology for a cashless society to fulfill the prophecy of the Mark of the Beast.

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